• 1 Post
  • 24 Comments
Joined 1 year ago
cake
Cake day: June 27th, 2023

help-circle


  • Dat veranderen van het kiesstelsel klinkt echt enorm zorgelijk. Je wil gewoon dat één stem één stem is, dat is het eerlijkste. Daarnaast hoort bij democratie dat ook minderheden beschermd worden. Ik begrijp dat deze partijen niet goed snappen hoe dat werkt, maar dat hoort wel bij een democratie. Het is niet de dictatuur van de meerderheid. Als mensen niet op van die asociale partijen stemmen, dan heb je dit soort gekke fratsen ook niet nodig.


  • I am sorry to hear that. I think your mother ignoring autism can be as harmful as her telling you have it while you don’t. In both cases, you are not seen and accepted for who you are.

    I have an official document stating that if I am incapable of making decisions, my parents are not allowed to make decisions for me and they cannot be with me in the room by themselves or touch me. I feel quite guilty about that, but I just cannot deal with what will happen otherwise.




  • I can see that you did not mean anything offensive by it. However, I have had similar things happening to me (misdiagnosis of autism so my parents did not have to take responsibility for tramuatising me) and I might have responded similarly.

    When someone imposes a diagnosis on you that is wrong and does it for selfish reasons, when you are a child, it is very harmful. It hurts your feeling of self worth to the core and makes you constantly question yourself and who you are. It takes a lot of strength to stop the selfdoubt and finally conclude that you do not have autism and that what you feel and think is correct and not what you have been told all your life by the people you were supposed to be able to trust. That is really a very difficult thing to do, because the anxiety that something is “wrong” with you after all is always there. It takes courage.

    If you have been struggling with questioning yourself in this way and if you state that you are not autistic after all, then it is difficult to deal with a response suggesting that you might be wrong. That is almost painful.

    I know that you did not mean it that way. There is no way you could have known if this is something you have no experience with. Also, I cannot say something about why someone else responds in a certain way. I might be wrong about that. However, when I read your question, I immediately got quite triggered as well. I guess I just wanted to explain where a response like this can come from in some cases.


  • Are you still in that situation or do you mean that that happened in the past? For me it got better once I left home. Although I was still in contact with her. Now it is much better, because I only occasionally have contact with her and only via text. It took me years to get there, but I did. I hope you do too if you have not already.



  • I thought I was the only one! I really did not know that this is something that happens more often.

    My mother managed to convince her psychiatrist to diagnose me with autism when I was 13. He told me that I had autism and that if I did not get treated, I would be alone forever and I would never be able to make friends. He also called it a handicap. No treatment was started, there was no help or anything after that. The psychiatrist told me and I never saw him again. My mother told everyone around her I was autistic and they all felt very bad for her, including me. I felt really sad she had me for a daughter and I hated myself for being who I was. I also was bullied in school and I thought it was my own fault because I was autistic and therefore I did stuff that made others bully me. I was the one in the wrong and it was just a response to that, I felt.

    Turns out I am not autistic at all. Like, I had it checked out thoroughly and there was no doubt about it. I actually an able to emphasise with others better than average etc. I also have some really close friends, which I made once I was able to leave home. I do have CPTSD though from severe emotional neglect and psychological abuse.

    It is so weird to see similar stories here. I know my social skills are fine, but I still feel insecure about my social functioning. I am always looking for stuff I might do wrong that confirms that I am autistic after all. I also still feel like something is fundamentally wrong with me and as if my existence is somehow an enormous burden for others. (This is not how I feel about autistic people, but it is how I was made to feel about myself by that diagnosis.) It is a feeling that is very difficult to change.






  • It is not. I am not saying people should not eat healthy or should not try to lose weight. I am just saying that pushing the oversimplification that for everyone it is just calories in vs calories out and that it is only about willpower is not correct. People should get the right help with losing weight and the factors that cause the weight gain or makes people not losing the weight should be addressed.

    There is lots of scientific work on this. I copied some links from another comment I made.

    For example, this is an article in Journal of Obesity. It discusses the role of willpower and provides an overview of some of the research on other factors that affect whether people lose weight, such as metabolic compensation.

    This is another interesting paper in the Irish Journal of Medical Science on patient’s view on obesity as a disease. I think the conclusion of this study aligns well with some of my claims:

    The presence of beliefs and perceptions to support the narrative that obesity is a choice, that choosing to eat less and move more effectively treats the disease and willpower is a principle determinant of weight loss maintenance may negatively impact long-term treatment. A belief that obesity is a choice will see prevention and treatment strategies continually focus on education regarding eating less and moving more, which may be suboptimal. Therefore, the narrative must change and align with the science regarding the biology of obesity as a disease.

    [This] (https://www.sciencedirect.com/science/article/abs/pii/S0953620521000029) paper on weight regain also claims that it is not just about compliance with a diet, but that, amongst others, metabolic adaptation and changed appetite play an important role as well.

    If you disagree, please provide some substantiation. I would be interested in reading it.


  • Thanks! I think you are describing what a lot of people experience. Weight loss is highly complex and by oversimplifying it, lots of people do not get the help they need and are made to feel bad about themselves.

    There is actually quite some scientific work supporting what I am saying. For example, this is an article in Journal of Obesity. It discusses the role of willpower and provides an overview of some of the research on other factors that affect whether people lose weight, such as metabolic compensation.

    This is another interesting paper in the Irish Journal of Medical Science on patient’s view on obesity as a disease. I think the conclusion of this study aligns well with some of my claims:

    The presence of beliefs and perceptions to support the narrative that obesity is a choice, that choosing to eat less and move more effectively treats the disease and willpower is a principle determinant of weight loss maintenance may negatively impact long-term treatment. A belief that obesity is a choice will see prevention and treatment strategies continually focus on education regarding eating less and moving more, which may be suboptimal. Therefore, the narrative must change and align with the science regarding the biology of obesity as a disease.

    [This] (https://www.sciencedirect.com/science/article/abs/pii/S0953620521000029) paper on weight regain also claims that it is not just about compliance with a diet, but that, amongst others, metabolic adaptation and changed appetite play an important role as well.

    I am personally quite interested in work on obesity due to eating disorders. The reason for this is that I suffered from an eating disorder causing obesity for most of my life (fortunately, I do not have the disorder anymore). The constant pressure to just eat less and getting blamed if you fail, severely increased my eating disorder and I saw the same thing happen to others with similar issues. I know that this is anecdotal and not everyone that is obese has an eating disorder and not everyone with an eating disorder is the same. However, there is some limited evidence that weight neutral treatment of binge eating disorder has better outcomes. This and treatment for my CPTSD is exactly what worked for me.



  • My experience is that if you spend time on providing sources, people usually are not interested in them and will not change their mind anyway. So I do not feel like it is worth the effort in every discussion. However, if you are interested in the work on this topic that substantiate my claims, then I am very glad to provide some links to some interesting articles.

    This is an article in Journal of Obesity. It discusses the role of willpower and provides an overview of some of the research on other factors that affect whether people lose weight, such as metabolic compensation.

    This is another interesting paper in the Irish Journal of Medical Science on patient’s view on obesity as a disease. I think the conclusion of this study aligns well with some of my claims:

    In conclusion many people with obesity who agree obesity is a disease appear to have an imperfect understanding of the causes and treatment options. The presence of beliefs and perceptions that support the narrative that obesity is a choice, that choosing to eat less and move more effectively treats the disease and willpower is a principle determinant of weight loss maintenance may negatively impact long-term treatment. A belief that obesity is a choice will see prevention and treatment strategies continually focus on education regarding eating less and moving more, which may be suboptimal. Therefore, the narrative must change and align with the science regarding the biology of obesity as a disease.

    [This] (https://www.sciencedirect.com/science/article/abs/pii/S0953620521000029) paper on weight regain also claims that it is not just about compliance with a diet, but that, amongst others, metabolic adaptation and changed appetite play an important role as well.

    I am personally quite interested in work on obesity due to eating disorders. The reason for this is that I suffered from an eating disorder causing obesity for most of my life (fortunately, I do not have the disorder anymore). The constant pressure to just eat less and getting blamed if you fail, severely increased my eating disorder and I saw the same thing happen to others with similar issues. I know that this is anecdotal and not everyone that is obese has an eating disorder and not everyone with an eating disorder is the same. However, there is some limited evidence that weight neutral treatment of binge eating disorder has better outcomes. This and treatment for my CPTSD is exactly what worked for me.

    I hope that this provides you with enough evidence to at least take the things I was saying into consideration. Please let me know if you find this useful. I have a lot more to share if you are interested.


  • Like I said, that is an oversimplification. There are many other factors that play a role, like the body working against the weight loss and lowering metabolism and increasing appetite, as I already discussed. There are also psychological factors and environmental factors that can have a big impact on weight loss.

    Just ignoring those makes losing weight more difficult and means you have to do it entirely based on willpower. If you are one of those people for which these other factors play a big role it becomes very difficult to keep the weight off in the long term just based on willpower. This can be the case, for example, if you have an eating disorder, very high stress, untreated medical conditions (e.g. hypothyroidism), not enough money to buy healthy food, problems with the body signaling hunger or fullness, unsolved emotional issues, and so on.

    Of course there are some people who just eat too much and who can just lose the weight easily by eating less. However, especially for people who are very overweight, these factors will play a role. They hear they should just eat less all the time and if they fail they are made to feel like a failure themselves and as if they have a lack of willpower. This is not the case. For them losing the weight is more difficult and the underlying issues should be addressed. You cannot just generalise like that and apply what works for you to everyone else.

    Edit: please find sources for my claims in my comment below.