Hey all,

I don’t know what to do, and need some advice.

Today I received the information that my father was moved to the palliative ward. He was in the hospital since a few days.

He had lung cancer, and lost half of his lung, now the tumor is back and restricting the remaining half.

He is dying. The doctors don’t know when, and if there are days weeks or months left. Nothing to do but to make hin as comfortable and pain free as possible.

I want to visit him badly. But I am panicking already just thinking about what to say or what to do. I could call him but me, taking on the phone…, and the main issue remains, what should I say?

I am bad at social interaction, yeah. I live with that. But this situation is wo much worse I ever could imagine.

I love my dad. He is one of the most important persons in my life. Loosing him will of course be painful, but being in a situation where I can get the call every day, every minute …

I am not able to work, think, sleep or be around other people very long.

Does anybody here have some advice?

UPDATE1:

Thank you all so much for your feedback!

TLDR: I organized a visit tomorrow, and made sure i will go through.

First, i want to clarify my issue, as yesterday i was rather vague: This is not a question about “to go or not to go”. I am experiencing meltdowns on the pure thought of “what happens during the visit”. I just lock up. That is nothing rationale. I have to overcome those meltdowns - and that is why i am asking for advice.

Your feedback helped a lot during this process. While i am still not at a point, where i don’t freeze, not doing so would for sure not come to any good.

I asked my spouse to go with me tomorrow. She will make sure that i will go through. Also, i don’t have to worry about medication to much ( I get medical cannabis), as she will drive me home if needed.

Again, thank you all! And every feedback is still welcome, it really really helps!

  • Catpuccino@lemmy.world
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    1 天前

    I just lost my dad to cancer at the end of August. My last conversation with him, I asked him questions along the lines of “Are you in pain? Are you scared? What is worrying you the most right now?” My dad was very resilient to the end. He assured me he was in no pain and was unafraid, that he mostly felt very tired. His biggest worry was that my mother would stop eating and I had promised him to make sure she eats and is taken care of. He seemed much more relieved by that news than anything else. He then started talking mostly on his own, he reminisced about the life he lived, regrets he had, things he is proud of. He started to fall asleep mid story and I let him rest not knowing he wouldn’t really wake up again. 2 days later he passed.

    If I were you I would absolutely call. You can use the questions I asked my dad if you think your dad would be receptive to them. I think at the end of life, people want a space to express how they really feel even though normally the subject of imminent death is very uncomfortable. I think, had I not asked him what was worrying him the most, he might have died holding onto that unvoiced stress. That’s just my experience though. My heart goes out to you and your family. Please take care of yourselves and my deepest condolences about your father.

    • vapeloki@lemmy.worldOP
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      15 小时前

      Thank you! While my dad would shrug off questions like those, you helped a lot!

      I asked him questions along the lines of “Are you in pain? Are you scared? What is worrying you the most right now?”

      I just wrote with Mom. She is currently at the hospital. As I have no a visit origanized for tomorrow, i did something that would never have crossed my mind. I asked if he has some wishes, i now he hates the hospital foot. He wished for cake. Fucking cake.

      I don’t know why, but I am sitting here, crying in relieve. Suddenly, it doesn’t seem to far fetched i am able to “survive” a visit without meltdown, panic attacks or other shenanigans my brain throws at me.

      Thank you stranger on the internet. Thank you!

  • Jerkface (any/all)@lemmy.ca
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    16 小时前

    I missed the chance to spend my mother’s last moments of awareness with her. If you do not do this you will regret it for the rest of your life. It will be far worse than any awkwardness and inhibition you now feel and it will never end.

    • vapeloki@lemmy.worldOP
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      16 小时前

      I fear as much. Thats the reason i am asking for help. I am not asking for “should i do it or not”, that is not the point.

      No, i am asking because i am having meltdowns, lock-ups in this case, just imaging what this visit will look like. So i do what i know helps: Rationalizing.

  • Strider@lemmy.world
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    2 天前

    If you think calling him is the right thing, call him. It won’t be easy (more than a regular call) and the exact words won’t matter but you want to do it.

  • ruuster13@lemmy.zip
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    2 天前

    Make the call or go for the visit without figuring out what to say. You can start with “I don’t know what to say” if needed. Nobody is good at this social interaction, so let yourself not be.

    • vapeloki@lemmy.worldOP
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      16 小时前

      I would if i could. I am currently not able to. I just lock up … rationalizing helps in such cases for me.

      All this feedback here helps. I moved a step further today. I will visit him tomorrow. My spouse will go with me, drive me, keep me company.

      I am still panicking, and i am still locking up imagining the situation. But one step after another.

  • y0kai [he/him]@anarchist.nexus
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    2 天前

    I went through this years ago. I wanted to talk to my dad badly before he died and I didn’t know what to say. I had questions I wanted to ask, but I didn’t even know where to begin. Near the end he slipped into a coma for the final two weeks and there was no talking to him or asking questions that could really be done. I put headphones in his ears and let him listen to his favorite albums.

    The thing is that before his coma, all I wanted to say… It didn’t really matter. I just knew I had to be there. Thinking back, he had the opportunity to talk to me as well and he didn’t say a lot beyond how much he loved me. I think if I were you, I wouldn’t worry about what to say because communication isn’t always about words. Maybe just be there and sit by his bed. Perhaps he will say something to you, perhaps not, but I know he will be happy just to have you there. Maybe bring a book or something and read to him. It won’t really matter what it is. I think just being there is key. He knows who you are and what you’re like and I doubt he’ll expect more than you just being you.

    Sorry you two are going through this. It is hard and in some ways I’d be lying if I said “it gets better”, though in a lot of ways, with time, it does. Your memories of him likely wont fade in time as much as you think they will. You’ll always miss him and he’ll always have been taken too early but you’re his son and he will live on in you. He sounds like he was a good father and you’ll always have that to draw upon.

    Forget about trying to say anything. If there are words, they will come, but there needn’t be. Just go and be with him. That’s likely all that matters.

  • 18107@aussie.zone
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    1 天前

    When my father was diagnosed with MND, I had 5 years to decide what to do. The extra time still didn’t make the decisions any easier.

    I think the best thing you could do is just visit and spend time with him. Maybe play a board game, or solve solve a crossword and ask him for help with some of the clues. It really depends on what his strengths are, and what he enjoys doing.

    If you want really practical advice (but not helpful emotionally), a list of accounts and passwords can be really useful (electricity, water, car insurance). If he is the only one with intricate knowledge of a particular thing (Wi-Fi router setup, a half-built car engine, loans to family/friends), asking about these and getting it written/drawn can make things easier in the future.

    I know this is a rough time, and things aren’t going to get easier for a while. Keep him company if that helps, but don’t burn yourself out doing it. Your thoughts and feeling are just as valid, and there is no shame in seeking help/advice.

    • vapeloki@lemmy.worldOP
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      16 小时前

      Thank you!

      When my father was diagnosed with MND, I had 5 years to decide what to do. The extra time still didn’t make the decisions any easier.

      We all knew, that this would come, for around 2 years now. I put this thought away, and ignored this fact for those 2 years.

      It really depends on what his strengths are, and what he enjoys doing.

      That may be one of my issues. What he loved to do, and we have done together, is stuff like building furniture or traveling. Ever since the first cancer diagnosis, he was not able to do that anymore. And since he needs Oxygen, he only left the house for doctor visits.

      I think he is glad, that the end is near. He told my mother, asked why is was moved to the palliative care unit, it is nothing bad, it just because he would have more peace and quiet there.

      We are both not the biggest talkers. Or silent sitters. We did not meet just for talking, and if it gets silent, we just leave, do stuff on our own.

  • prettybunnys@piefed.social
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    1 天前

    Go see him.

    As far as what to say, your presence is enough. But be awkward, be weird, be whatever you want, or say nothing. Just be there.

  • Zugyuk@lemmy.world
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    1 天前

    Visit or call if ya can. For these types of situations, i try to think of them as if things had already happened. Look back and think about what would make you feel the least bad.

  • evilcultist@sh.itjust.works
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    1 天前

    Mine died during Covid lockdown while I was in another country on lockdown. I don’t do well with those sorts of interactions either. We didn’t have the relationship you seem to have had with yours, but I do wish I had been able to be present for just a little time, if nothing else. It takes me a long time to process things anyway and I think it’s probably taken me until this year to feel like I understand him better. I suspect he had the same issue with interactions as me and would’ve wanted me there, but wouldn’t have been able to say it (doubly so, since he had lost the ability to speak by the time I knew he was going to die).

    • vapeloki@lemmy.worldOP
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      16 小时前

      Thanks! I think this is the closest i can relate to currently.

      My dad and I, our relationship was “special”. At least for other people. We didn’t talk that much (besides politics), but we loved to do stuff together like building a huge model train-track in the basement, traveling, building furniture.

      We don’t do phone calls for small talk, hell we don’t do small talk. I am pretty sure he is on the spectrum too.

      And knowing - that after years of “confinement” in his own 4 walls - he is glad to know, that this will have an end not to far down the road, i am not to much worried about him.

      But not visiting him, not giving him and me the chance for some final conversations, no way.

      As mentioned in another comment, i am locking up just thinking about the possible scenarios.

      I suspect he had the same issue with interactions as me and would’ve wanted me there, but wouldn’t have been able to say it

      You brought me to this thought, and it helped. I now have at least organized that my GF will visit my dad with me tomorrow. And if she as to drive me in on a wheelbarrow…

  • Triumph@fedia.io
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    1 天前

    I wrote my dad a letter, gave it to him. He read it, we didn’t talk about it, that was that. He had this letter to reread any time he wanted, and I like to think it was in his pocket when he passed a few weeks later. I did not save a copy for myself, I don’t remember exactly what I said. It was for him; what was for me was giving it.

    Try this.